A Montgomery man featured recently on Local 12, who suffered from so-called butterfly disease, died Thursday night.
“At the end of the day, this isn’t about politics. It’s about dignity,” Shane DiGiovanna exclusively tells PEOPLE ...
A man with a rare disease that resulted in him being born without any skin on his left leg is fighting to make life better ...
An Ohio man with a rare terminal disease is fighting to help thousands of others with the same condition. Shane DiGiovanna, 27, of Cincinnati, was born with epidermolysis bullosa, or EB, a painful ...
Add Yahoo as a preferred source to see more of our stories on Google. Ohio resident Shane DiGiovanna, who has the rare disorder epidermolysis bullosa (EB), is advocating for legislation to help cover ...
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